Admission to hospital

Hi

As most people were aware Milly has just come home from another hospital admission, she was initally treated with a throat infection but after not getting any better it was decided she must be admitted to Nepean hospital here she diagnosed with " suspected CCF (Congested Cadiac Failure)" here i was asked AGAIN if Milly was to stop breathing what were my wishes-- Like always and always will be my same answer-- You must give all medical treatment needed and if Milly wants to respond she will.... BUT this Dr continued to go on about the QUALITY of life for Milly and that they dont have agreat sucess rate of CPR and that she could be brain damaged if they do manage to get her back with my response being "nobody gave her a quality of life the day she was born i gave her the quality of life she has had for the past 3 years.( i think the doctor got the hint with my response).


Milly was transfered to Kids Hospital at Westmead via NETS and was taken into Resus were we remained for approx 4 hours here AGAIN i was asked about my wishes for Milly if she went into Cardiac Arrest and i gave the same response as i always do, eventually we were sent to the VAriety ward for the night when waking in the morningMilly had been coughing up blood Dr was paged and reviewed Milly and asked that the ENT(ears,nose throat Dr) came and review her int he day---This never happened---


Once Transfered to Hunter Baillie ward i AGAIN was asked the same stupid Question(iam sure you know the answer now Pitty the doctor's dnt) here Milly continued to remain on her CPAP machine 24 hours a day on a pressure of 12 untill the ICU(Intensive Care Until) Team came to review her, here he decided Milly needed more support then her home machine could give and her provided her with a Bi-PAP machine which gives more pressure and if this didnt work "she would win herself a bed in ICU" a quote form the ICU team,Milly took to this machine and she was starting to breathe slowly and required less oxygen ---YAY--.


After a couple of days she finally had her Echo done(a scan of her heart) here the Cardioligist said there was nothing wrong with her heart and there is no fluid around the heart as suspected and her liver is okay Quoting the man"her heart is fantastic compared to what they(dr) told me to expect) the weight on my shoulder had been lifted that very moment knowing he heart was good and not the problem of this admission BUT WHAT WAS???


I straight away asked the treating Dr what know and she answered with "it must be a virus and she will get over it soon"

Milly started to show signs of getting better soon after and she started to interact more with me her dad and Brother..

The respiratory team came to see Milly and decided she needed to remain on the Bi-PAP machine and she would have to take this home--here came the fight with the hospital dr and respiratory team --..

Problem's

1.. No machines to hire or to get from PADP
2. Another 8 kids waiting in the hospital for machines to go home with
3. Dr not reading Millys file and trying to discharge her to another hospital WITHOUT a machine

After 5 days of Milly being well and ready for discharge home i asked to speak to another Dr in regards to why she could not go home with the machine she had with her currently i was advised this was hospital stock and she couldnt take it--- Now common sense would say what i said to them if Milly was using it now they could not use this machine for another patient and this was true so after another night of sitting in a single room wasting time waiting for a machine i informed them if they did not get her a machine TODAY that i would take the machine she currently had and leave and SURPRISE SURPRISE a machine turned up.... and i took Milly home

She is doing well is still on BI-PAP and sleeping better then she ever has before so that means im sleeping aswell YAY


I would like to thank my Family and friends for all the support and wishes for Milly while we were in hospital again.....